tag:blogger.com,1999:blog-8188078120365131355.post7174226189654943968..comments2024-01-16T04:04:41.045-05:00Comments on Someday I'll Sleep Autism Blogs: My Not-So-Brave Thoughts on Lent this YearCammie Dianehttp://www.blogger.com/profile/07137080807945525006noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-8188078120365131355.post-500860929385812272014-03-03T19:14:19.312-05:002014-03-03T19:14:19.312-05:00EC- I'm crazy about our schedule! I mean, sch...EC- I'm crazy about our schedule! I mean, schedules are such a key to stability and that is definitely big with a lot of these kids! Cammie Dianehttps://www.blogger.com/profile/07137080807945525006noreply@blogger.comtag:blogger.com,1999:blog-8188078120365131355.post-25368405131402076352014-03-03T19:13:12.728-05:002014-03-03T19:13:12.728-05:00S- I was so afraid that I was going to forget to ...S- I was so afraid that I was going to forget to come back and respond. Mae's main GI problems involve constipation that will last (with laxatives and magnesium and probiotics) around 8 days, which is of course super excruciating. With Patrick exposure to dairy always results in being up most of the night too (which also happens with Mae, especially in the 3-5 am window). I don't know if that helps at all, but I know that we've definitely seen a correlation between what both of them eat and how they sleep at night.Cammie Dianehttps://www.blogger.com/profile/07137080807945525006noreply@blogger.comtag:blogger.com,1999:blog-8188078120365131355.post-79456596465990224622014-03-03T18:51:49.175-05:002014-03-03T18:51:49.175-05:00I went to a Tridentine Mass on Sunday, and the Epi...I went to a Tridentine Mass on Sunday, and the Epistle was St. Paul's famous passage on charity (1 Corinth. 13 - If I speak with the tongues of men, and of angels, but have not charity, I am become as sounding brass, or a tinkling cymbal....) The priest in the homily spoke of Lent, and that our penances, fasting, and charity expiate sin. And he said, if our penances begin to wear on us and we become irritable and aggravated, we should skip them, because if we do penance without charity we may as well not do it at all, citing St. Paul "if I should deliver my body to be burned, and have not charity, it profiteth me nothing." I thought it was great how he worded it.<br />It really got me to thinking that what I was going to try to do for Lent was, besides spontaneous "fastings" and "penances" (looking for ways to make small daily sacrifices that others won't notice, such as maybe not having a second cup of coffee when I want one, or maybe leaving a parking space close to the door at the grocery store for someone else), I would try to be mindful to do the things I do for others with greater charity in my heart. And I would try to practice greater contrition in my prayers to God. I'm hoping this, with spiritual reading daily, will make it a fruitful season.<br />I know whatever you do, great or small, given all you have on your plate right now, will be greatly appreciated by Our Lord.<br />God Bless. ~ Bonnie<br />So glad you found out what was up with Mae. Hopefully things will begin to move in a positive direction again.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8188078120365131355.post-78418692221452946922014-03-03T16:35:44.469-05:002014-03-03T16:35:44.469-05:00Wow....I didn't know play dough had wheat flou...Wow....I didn't know play dough had wheat flour in it either: that's good to know! Hope that Mae gets better soon!Mariannoreply@blogger.comtag:blogger.com,1999:blog-8188078120365131355.post-63964369293211478952014-03-03T12:53:03.870-05:002014-03-03T12:53:03.870-05:00Hi,
I'm a new reader and my daughter is also o...Hi,<br />I'm a new reader and my daughter is also on the spectrum. I'm so sad that the therapist told you that it is bad to give into your daughter's demands because you have other children. I have two other children also and that is EXACTLY why I'm more apt to give into demands, just to keep some peace in the house, right? If she was an only child and I could totally devote a standoff time with her I would, but I can't. We were just filling out one of those many behavior studies and some of the questions were like how does she respond to change in routine or performing hard tasks and we were like, we don't change the routine and we don't make her do hard tasks. Ah, such a journey.....EChttps://www.blogger.com/profile/07741083982267752180noreply@blogger.comtag:blogger.com,1999:blog-8188078120365131355.post-82734471667092131252014-03-03T12:13:33.580-05:002014-03-03T12:13:33.580-05:00If you don't mind my asking- what are Mae'...If you don't mind my asking- what are Mae's GI issues and has she always suffered from them? <br /><br />My daughter is 12 months old and has NEVER slept longer than 2 hours at a time at night... usually she wakes at least once an hour, and is so fitful and restless and uncomfortable at night. We think: maybe tummy troubles? Maybe something I'M eating (she doesn't eat solids, really...) I've done TED a few times, but then we started to suspect that she reacts in some way to oats and rice. ??? So, we're at a loss and maybe your experience with Mae and Patrick could shed some light on my Margot's experiences?<br /><br />Thank you and God bless. Sarahhttps://www.blogger.com/profile/03561470902921572737noreply@blogger.comtag:blogger.com,1999:blog-8188078120365131355.post-85880578277982420742014-03-03T07:48:56.907-05:002014-03-03T07:48:56.907-05:00Cam, Mae is so blessed to have two such vigilant p...Cam, Mae is so blessed to have two such vigilant parents!Michele Chronisterhttps://www.blogger.com/profile/05328455640818231923noreply@blogger.comtag:blogger.com,1999:blog-8188078120365131355.post-39327851245863804322014-03-02T22:53:13.423-05:002014-03-02T22:53:13.423-05:00Please excuse typos. I'm a less than perfect p...Please excuse typos. I'm a less than perfect phone touch screen typist.Lizhttps://www.blogger.com/profile/05127202199834183627noreply@blogger.comtag:blogger.com,1999:blog-8188078120365131355.post-9020220597482009752014-03-02T22:53:05.887-05:002014-03-02T22:53:05.887-05:00As frustrated as it must be to have not noticed th...As frustrated as it must be to have not noticed that she was eating the play dough, I am so relieved for you that there was a cause. I cannot imagine how stressful it must have been to wonder if there was going to always be GI problems.<br /><br />I am an Eastern Christian, so Lent began for us tonight after Forgiveness Vespers. My priest was speaking in his homily about how the first words of Matins tomorrow is "Fast first from sin". He recommended thinking about ways to fast from things such as thinking of your own importance (ie using smartphones to remaining perpetually connected - you are not so important that you need to know what is going on 24/7), trying to solve problems or think complex thoughts (avoid debates, politics, etc and instead return to living a simple, contemplative inner life), and meditating on the forgiveness of others were good places to start. I don't know if any of that applies to you, but thought I would share if it offered you any inspiration. He also spoke about how the most important part of the Lenten journey is to arrive with joy at the feast of Pascha. Especially given your current struggles and crosses, I think putting one foot in front of the other and still greeting Christ with joy despite all you have been through sounds like a great plan.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8188078120365131355.post-18856286205134262622014-03-02T22:52:00.934-05:002014-03-02T22:52:00.934-05:00Cam, last year my husband had brain surgery the en...Cam, last year my husband had brain surgery the end of January to remove s metastatic tumor from his brain. That wsd followed by radial surgery 3 days after our grandson was born (the day Pope Benedict resigned. Much of my Lent consisted of driving my husband to and from his office and to and from doctor's appointments 70 miles away. I told my daughter I wasn't adding any extra Lenten sacrifices (we already do meatless Lent except for Sunday. I was instead simply embrace the sacrifices God had put in my life with as much joy as possible. Was it a great Lent? Honestly, I've probably had some that seemed more meaningful. But managing to slip into church to light s candle most every day made it at least feelike I was doing something to help. S year later things seem to be stable and I'm thinking about a more conventional sort of Lent. I do think that sometimed God chooses our sacrifices for us and embracing them is better than simply giving up candy.Lizhttps://www.blogger.com/profile/05127202199834183627noreply@blogger.com