One of the things I've been incredibly grateful for this past year is all the amazing therapists that we've been blessed to have in our lives. This week I was especially aware of that blessing when I received the results of a report from Mae's OT that she did on her own for me, evaluating Sadie. We've all suspected that Sadie had sensory processing issues, but I was surprised to see the whole report, probably because Sadie's sensory seeking behavior was so overshadowed by Mae's sensory seeking. But it was definitely there and shown through in about 75% of the areas tested in, showing up the most strongly in the vestibular area.
Vestibular dysfunction basically involves balance and knowing (or really in this case not knowing) the position of her limbs in space. When I began reading more about vestibular functioning (again) I found quite a bit about it's relation to auditory processing (which is another area with big red flags) and problems with the inner ear. And it makes me wonder if it relates to the many, many ear infections she had in her first years of life (something like 18 in 18 months). Sadie's vestibular system under-registers her movements.
Reading about the signs of kids with sensory seeking vestibular problems is like reading about either of the girls .
Sadie with her always moving, spinning, jumping, non-stop movements and her love of the fastest rides at Disney World when she was all of three years of age (she loved Big Thunder Mountain and Splash Mountain and because she was so tall she could actually go on them at that age) seems like the portrait of a kid who's dealing with a under registering vestibular system.
Right now I'm finding roller skating is a huge, huge help. I had her skate for about fifteen minutes before school yesterday morning and then had her get up and do a few laps around the living room after each subject and it was amazing how much easier reading was!
I'm going a little stir crazy. Not being able to walk long (or pretty much any) distances is definitely the challenge of this pregnancy. Yesterday we went to the grocery store to pick up a few things. It was a quick trip... maybe twenty minutes from the time we walked in until we walked out, just picking up things that we needed, and I was only a few minutes in to walking around before the very real contractions started. Of course they stop as soon as I sit down.
Since walking is such a big part of our lives normally not being able to walk for more than few minutes is definitely a big change. And I just have to keep reminding myself that sitting down so much is not being lazy (because sitting around this much feels really, really lazy in my head) but definitely seems to be a required part of keeping this little guy safely in place for the next month and a half!
An outtake from the weekly photo taking process. (because I just can't call snapping a picture with my computer a "photo shoot") |
I'm so thankful for all the tools she's mastering and all ways that she's finding to communicate!
I think we're also realizing that if you want to hear Mae talk, get her drawing. She loves to draw (and look at books) and could probably spend all day at the table drawing balloons and flowers and mermaids and faces.
These days it's almost all about mermaids! |
Maggie is in therapy at the moment and is currently trying to jump in her skates. Because apparently zooming across the hardwood floors in skates isn't daring enough.
We just had this conversation while Sadie was coloring a picture of a baby being baptized in her religion workbook:
Sadie: "This is a picture of Maggie being baptized. What was I doing when Maggie was baptized?"
Me: "You were being pretty wild."
Sadie: "I was. What was I wearing?"
Me: "A pink and yellow dress. But all you wanted to do was run around. You didn't want to be in any of the pictures."
Sadie: "It was because I was so excited that Maggie was being baptized!"
The wildness just couldn't be contained. |
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