Since the weekend I'd been so worried about Mae that I hadn't even been able to write about it (if you know me you know how rare that is).
After her ER and doctor's appointment last week Mae basically couldn't be persuaded to drink more than a couple of sips a day of any sort of liquid. After a day with a dry diaper, having just slept 15 hours and going back to sleep less than seven hours after waking up, I called the doctor again because handing her a sippie cup every two minutes obviously wasn't working.
They had us come straight in.... and that is when Mae's sensory issues and autism, alongside the general view of "what dehydration looks like" began to cause problems. By the time we saw the doctor we were looking at two not totally wet diapers in about 36 hours, alongside no food and about five sips of water.
But the moment we stepped into that doctor's office Mae was hyper stimulated. She was bouncing off the walls. She kept turning the tap water on to make her sister's doll swim in the sink and kept trying to climb up into the sink to splash.
The doctor took one look at her and told me that she was perfectly healthy, she couldn't be dehydrated. Dehydration leads to fatigue. She obviously wasn't fatigued...
The doctor who first diagnosed Mae, the one who I trusted so much, finished the residency program and moved on to open her own office way, way down south, and while I do like the new doctor we've been seeing during this illness, I don't think she has quite the same understanding of autism (or the chance to read up and research like Mae's former doctor did).
It can be really hard for people to understand that as often as not when Mae gets hurt she laughs loudly instead of crying. She might have a tiny ouchie that brings on tears, but bigger things, like being bit by a child on a swing and thrown ten feet, often result in laughter. It's one reason why in the past it has been hard to know when she's sick until she's really, very sick. So while her bouncing off the walls told the doctor that she wasn't lethargic, it didn't inspire me with the same confidence that everything was normal and that she was healthy.
Thankfully she ate to popcicles that night, had yogurt and an apple and some g.f. bread with peanut butter the next day and finally yesterday, after four full days of not drinking, drank three glasses of almond milk and happily acted as though she'd never been sick (and finally stayed up past 3 pm! The sleeping from 3 pm until 6 or 7 am was one of my biggest concerns).
I'm praying this means she's finally beat whatever virus, or series of viruses has plagued her these last two months.
|Playing with the sprinkler...|
If Paul's in the room and responds he bounces up and down and giggles, incredibly proud of himself for being able to get Daddy's attention.
Later I saw her playing with the doll and heard her singing some words quietly to herself: I snuck forward and listened. "My-nah! My-nah! My-nah!"
Was that the name?
It wasn't until I was lying in bed later that night that it came to me. I don't think she was saying a name, but I am 99% certain that she was letting us know that she thinks that doll is "Mine! Mine! Mine!"
She's also been begging for doughnuts. But gluten free dairy free doughnuts are not inexpensive (or easy to find). So last week I went on Amazon and looked at doughnut tins, determined to find a way to make her gluten free dairy free doughnuts. After finding a Donut Pan (it's the exact one I just linked too) that shipped for less than $10 I decided to give it a try.
I decided to try out a gluten free cake mix I'd had lying around that I knew the kids liked. Twenty minutes later we had success! The doughnuts were devoured by all three of them... and I was so happy to see Sadie have a treat that she normally can't have!
Now to experiment with some homemade recipes (I tried one yesterday and ended up with a caramel burn and doughnuts that wouldn't stay together... so on to another recipe!)!
For more Quick Takes, visit Conversion Diary!