Here's the latest Mae update. I included all the names of the tests for anybody curious or interested about that sort of thing:
Today's appointment was to discuss the results of the two 2-hour tests we'd done at the ABA therapy center, called the VB-MAPP (The Verbal Behavior Milestones Assessment and Placement Program). On Thursday we'll head back over to State for her second 2-hour test there (they re-did the ADOS for the study and began the Mullen Scales Assessment last week and will continue with the Mullen this week). Friday morning will be Mae's first therapy appointment here at the house and in the afternoon after Paul gets home from his classes there's a cognitive test back at CMH. And since therapy will be here at the house six days a week, she'll have her second session on Saturday morning (and then it will be Monday through Saturday, every morning). I think this new schedule is definitely going to take some getting used to.
Mae was ready to play when she got to the therapy center this morning. She picked up a tiny piece of balloon that she found on the floor, looked at me and said "ba-lloon! ba-lloon!" in a perfectly clear little voice before jumping into my arms and giving me an excited kiss, pleased with her new word.
Mae's case worker, one of the heads of the therapy center, one of the therapists that Mae will be working with (there will be three and each will be here two days a week), an intern and Mae and I all went into the little assessment room to go over her test.
The graphs showed that Mae could do about 3/4 of the things in the 0-18 month category. In the 18-30 month category there were a few lone boxes filled in and the 30-48 month category was completely blank.
We talked about the fact that Mae is obviously very smart, but she's very good at ignoring people and stubbornly refusing to do what she's asked. She's also gets very attached to little toys very quickly, but if she's told she can only have that toy if she completes a task, she'll switch her attention to something else very quickly.
So basically the assessment wasn't a perfect example of what she actually knows or can do (for example, she's really good at puzzles, and zipped through them when we were at the university test, but refused to do them when we were at the therapy center), but it's a good starting place for working on getting her to do more. They said they have a feeling she's going to zip through the goals once she really gets going and that we'll probably have to set new ones before the four months are up (when we'd normally set new goals).
And we talked about how we set up a new downstairs baby gate today that is heavy duty and six feet tall and she scaled it this morning... and about the "eloping" problem, so all that will be going into the plan too.
That's the latest!