We went to the museum yesterday and Mae loved looking at the butterflies. She wanted to come back and stand by them and stare up at the beautiful colors while showing off that she can now say "butterfly" pretty well and even "white butterfly" a few time while pointing up at some of her favorites.
And as I was going through these pictures and listening to my girl who's in the other room doing therapy and has been dancing around saying "passe" while pretending to be a ballerina like her big sister, I couldn't help but think that it was the perfect picture for today, April 2nd, Autism Acceptance day.
On one of the posts I wrote recently someone commented and said they dislike the idea of a child as "a poster child" for autism. I'm not sure if that was directed at me talking about our experience these last 7 months, but since it was left on this blog, I thought I'd address it.
I've never thought of any of my kids as poster children for anything. I've blogged since Sadie was about six months old, which means since about 12 months before Mae was born. I blogged through my pregnancy and some of you have been along for the ride, hearing about Mae's first smile and first laugh and first steps because I'm a mom blogger and that's kind of what I do. I write about life. And autism is now a part of our lives.
I also write about autism because I think it's important to see a side of it that isn't looming and scary and believe me, life in this house isn't either of those things . Googling autism can be just that. I can go to a certain autism site and be told that it's going to destroy my marriage, that 19 out of 20 marriages with autistic kids end in divorce (I'd really like to see where those statistics come from), and that it's the end of my life. If I believed what was out there I'd be pretty terrified.
And that is a large part of why I talk about our experience. Because while we have our share of struggles we also have a lot of high points and moments where I stand in awe of what she's accomplishing and who we're beginning to learn that she is.
And so I share... because I'm a writer and it's what I do, how I deal with things and also because I like to think that maybe someone else out there will say "Yes, I've felt exactly like that!" or "Wow that's a different way of looking at things" or maybe just to will smile for a moment because some of the smiles in this house are pretty contagious.